Animas Sports Weekend 2014 – Registration

11 Apr

Registration for this years Sports Weekend opens on Monday 14th April.

I have been lucky enough to attend this event and have learnt more about and become more focused on my Diabetes than I ever as in the 18 years before.

If you are interested in attending please see the the information from Animas (cut and paste from an email I received) below.

Grumps.

“The Animas Sports Weekend is Friday 6th, Saturday 7th and Sunday 8th June 2014 at Loughborough University.

I’m delighted to announce the Sports Weekend registration will open next Monday, 14th April 2014. If you know of people interested in attending, please ask them to email sportsday@its.jnj.com for more details and to apply for a place.

Delegate criteria:
· There are 50 places available and will be allocated to newcomers on a ‘first come, first served’ basis.
· Delegates must be over 18, live with Type 1 diabetes and have an interest in sport (varying abilities welcome)
· Delegates can be using Animas, a competitor pump or injections. Places are £150 each.
· Those who have previously attended will be invited to join us on the Saturday evening for dinner. Places are £35 each.”

Why do I Bother?…..

10 Apr

Since attending, as a delegate, the Animas Sports weekend in 2012 things have changed for me. I blogged about the value I got from attending the weekend in a previous post.

So. What’s changed? Well. I am now The Grumpy Pumper. Ok, I was always a miserable bastard and was already on a pump, so in reality I’ve just formalised the obvious. I only created the twitter account as a joke (I tend not to take much very seriously you will be surprised to hear) and to keep my life with Type1 separate from that of my “Real” life.

Well. The second one backfired. I’ve become known to more people as “Grumps” than as the “Real” me. I spend more time on social media than I ever did. I think more and talk more about My Diabetes than I ever did. At times this annoys the hell out of Mrs Grumps, which can only be an added benefit!

Of course I could never keep My Diabetes separate from my “Real” life! Its part of me, I live with it and there is no escape from it. To be honest, its stuck with me, I’m a nightmare to live with and it servers it right for turning up uninvited.

So “being Grumpy” has taken over my life. Then why do I bother??
Because I have better focus on My Diabetes that I have in the 20 years since diagnosis, have learnt more in 2 years than I did in 18years and have met (either in person or on the interweb) the strongest, most resilient of people that I will ever meet. They are way too happy. Smile too bloody much, but the Diabetes Community who manage Diabetes (either their own or that of the children they care for) show what community and support really is.

What hasn’t change?
I’m still Grumpy
I’m still on a pump
It is still MY Diabetes and I WILL manage it how I want to

20 years since Diagnosis in August this year and I’m ready for the next 20. My Diabetes better watch out. Grumpy’s about!!

Live Long and Bolus
#NeverLetDiabetesBeatYou

Grumps

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Grumpy New Year

31 Dec

Since as everyone else is going a review of 2013 I thought I’d jump on the band wagon and do the same.

Suppose the main thing for me in 2013 is that I’ve met some amazing people through the #Doc and associated diabetes stuff. It’s been very helpful in spreading the Grumpiness.

One down side of the year for me has been my fitness. Through injury, but mainly being a lazy git I have achieved my all-time personal best level of unfitness, my highest weight and waist size ever. Ah well. At least I have achieved something.

None of this can be blamed on my Diabetes. Although my Diabetes has been very quiet this year. Maybe its because I sat my oversized arse on it and it can’t escape? My lowest HbA1c in 6 years of 7.1 % was a positive along with halting the damage to my eyes and feet in its tracks were also kind of good……..

So…… 2013…… Basically. I frowned…..

Sports Weekend = Frowning.

iPhone Backup 692

Bloggers Summit = Frowning.

iPhone Backup 856

Monster Manor Launch = Frowning

Mimi

QiC Awards = Frowning

Laura

PB

World Diabetes Day = Frowning

WDD

Well then. So what’s the plan for Grumps in 2014? Well…….

Hba1c under 7.0%

100 mile Bike Ride

5K Park Run

Reduce Weight

Kick Diabetes arse off this Planet

And Frown. Always Frown!!!

#NeverLetDiabetesBeatYou

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12 Ds of Christmas

8 Dec

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Just for Laughs

9 Oct

Ok. This may be the shortest ever blog I do…..

I was very fortunate to attend the European Diabetes Bloggers Summit this year. I met some amazing people, and frowned at each and every one of the in turn.

On the last day I was asked “Grumpy. Why do you blog?”

My immediate flippant off the cuff, going for the cheap laugh as always was “for attention”.

But since then I’ve been thinking about it a lot. Why do I blog? Why do I spend so much time as “The Grumpy Pumper”?

Simply, because whilst having Diabetes is shit, frustrating, annoying and every single expletive you can think of. I will never let it overtake me. Sure, it catches up at times, looks like it will get ahead of me, but I will always beat it back. And I will take the piss out of it to help give myself the boost I need to get ahead again.

So if whilst doing that via my blog, Twitter or Face book accounts Someone else gets as laugh, and that helps them gain some clear ground on their Diabetes. Then it was worth it. That’s why I blog.

With that in mind please take a look at my first video blog. As you will see, I’m not media trained. Let’s face it. I’m barely house trained.

 

Grumps

MyStar ExtraTM Blood Glucose Meter from Sanofi

1 Oct 20131001-100205.jpg

I was lucky enough to be invited by Sanofi to the press launch of their new meter, the MyStar ExtraTM. It’s the latest in the MyStarTM Range. It monitors blood glucose levels as do other BG meters, but it also estimates A1c of the person using it.

Disclaimer:

I was not funded in any way by Sanofi to attend the press conference. I received the press pack in paper copy and on a branded memory stick. I have kept the memory stick.

Sanofi did not ask me to blog about this device, I am doing it because I want to share about it.

The views stated in this blog are my own, not that of Sanofi or anyone else. They are also my understanding of the information received and are not to be taken as clinical advice.

I am not promoting or recommending this device, just trying to share information for people to make their own conclusions.

Ok. So that’s longer than most of my usual blogs are in total, and if any one made it through that without falling asleep I’m amazed!

Anyway. So, I get invited to this press conference for this new meter that will be available in the UK in 2014. I, like many people with Diabetes like new kit, especially meters. Always good to check out a new one, see what features it has and if I can use them to better help me to manage my Diabetes. For these reasons I accepted the invitation.

As an eternal cynic and Grumpy old sod (I know, big shock there) I was expecting a hard sell to a room full of health care professional by a marketing executive on how this meter was going to help them hit every “target” for their patients and enable them to “gain good control” of their Diabetes. By the way, I have put these words and phrases in “” as I have no idea how to portray the utter contempt for such wording in a blog. I hate demotivating language when it comes to mine and others Diabetes. I use Manage, not control. I can no more control my Diabetes than I can control the tide of the sea, but I can manage how wet I get. Basically, I can’t control the tide, but I can monitor what it is doing and use that information to keep a safe distance. The same for me with my Diabetes and blood glucose monitoring.

Given all of these Grumpy pre conceived assumptions I took my seat and waited for the onslaught. However after the introductions this guy stands up and starts talking about how this meter could be used to help motivate PWD’s to reduce their A1c. He talked about personal, achievable goals, not “targets”, used the word manage not “control”, and the reason for lowing A1c? To keep yourself safe! No mention for complications or scare tactics. This woke me right up. The guy was talking my language. It reassures me that whilst I have a long way to go in my quest to educate health care professionals that Diabetes is as individual as the person that has it, there are others out there of the same mind, trying to do the same thing.

This guy’s name is Dr William Polonsky and he is founder of the Behavioural Diabetes Institute.

The reason I mention all of this? Well, In my opinion, any meter or the data from it can be used to motivate me to manage my Diabetes to the best of my ability. But for me the heath care professional need to understand my motivation as well. If they don’t and they use the wrong language then it can have the opposite affect.

What about the meter then? Like I said it’s the next in the Sanofi family of the Star range. It is not an upgrade of the iBGStarTM and does not fit into your iPhone. One big plus point for me is that it uses the same test strips. Since I have strips for the other meters in the family it means I can get hold of this one when it’s available and test it without having to mess about with prescription changes etc. I don’t always end up using a new meter as my main one so not having to get new strip types means I am more likely to fully test it instead of running out of the few strips provided and then chucking it into a cupboard.

I like the look and feel of the meter, it’s compact but not too small. Clear black and white LCD display and easy to use so no issues there. It checks blood glucose like it should. Ranges can also be set.

The new feature is the estimated A1c. Now, this worried me straight off to be honest. I again made assumption that it would just work it out from average BG levels, and as a result a lot of testing during a hypo for example could skew the A1c estimation. However having heard the description of how the estimation is calculated its no longer something I’m concerned about.

There is a lot of maths involved in the way it’s worked out so I will give my understanding of how it works. On the meter you can tag a fasting blood glucose. So typically my first check of the day would be a fasting one. It then takes that reading as a baseline and then uses the reading through the day as well. As far as I understood it, the meter will cater for a lot of checks in a close time period and not allow those to skew the average. So if I did 6 checks in a hour due to a hypo, it would take this into account. From that data it uses an algorithm to estimate A1c value. A1c trends over time are displayed on the meter as well.

There were some statistics on the accuracy of the estimation and they looked good. Of course the only way I will be convinced of that will be to use the meter for a 3 month period and then compare

It to my clinical A1c test from the hospital. I don’t expect it to be spot on since its an estimation, but if it’s close and importantly consistent over time then I personally will find this meter to be a great tool in my armoury for managing my Diabetes. If it isn’t, then it most likely will bet retired to the ever growing pile of unused kit I have.

I will definitely be getting hold of one as soon as I can to give it a try. The meter will come with a new lancet device as well called the MyStar SylkFeelTM

That’s probably the most sensible blog I’ve ever written. Apologies to those who expected my usual writing. Normal childish behaviour will resume shortly.

Grumps.

#NeverLetDiabetesBeatYou

Safe Dex

27 Sep

I have this issue you see. I have a nasty rash.

It happens every time I do it. Ok, so it’s only once a month. You see I don’t get it for free. I have to pay for it and can only afford on session a month. It never lasts as long as I want it to. Other people sessions last so much longer than mine. I know this due to extensive Internet research. That’s a different issue though.

So back to my rash. It starts with an itch. About a day after I’ve put it in, then it starts to get red. With in 2 days the rash is there and it just gets worse and worse.

This week I finally asked for advice about my rash. I asked if I needed to change the speed at which it goes in?
Do I need to try different positions or technique?? No. The answer was so simple. Use protection! Use it every time.

So from now on, every time I insert a new Dexcom CGM sensor I will be using a “tough pad” between me and the device to solve my little problem. I will now always practice Safe Dex.

Many thanks to Kerri Sparling for her advice on this. Her blog post on CGM rash can be found at in this blog post.

Grumps
#NeverLetDiabetesBeatYou

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