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Peer Support at IDF 2017

11 Dec

If anyone is interested or just needs a cure for their insomnia, here are the slides from the talk I did at #IDF2017 World Diabetes Congress on my experience of Peer Support.

It was also live streamed on Facebook so if you want to see it then feel free.

Type1 Peer Support Slides IDF 2017

 

Live Long and Bolus

Grumps.

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Another Bloody Diaversary Blog

25 Aug

23 years ago today (unless you are watching on +1 or catch-up) my Type1 Diabetes was diagnosed with me.

Seen stuff recently asking “what would you have done differently?” or “What would you tell yourself if you could have?”

So here goes:

I was 90% sure what was wrong but I kept delaying going to the doctors.

So what would I gone earlier knowing what I know now?

No

Why?

I was a stubborn bastard then

I’m a stubborn bastard now

 

It didn’t worry me in the slightest

Would I react differently?

No

Why?

There was no drama.

No emergency.

My T1D was lucky enough to spend 25 years without having me inflicted on it, and I’d got as far down the path to so called adulthood as I was ever going to go.

I was the kind of person that is offensively calm about everything

I still am now

 

I didn’t involve any family, friends or work colleagues in any way

Would I if I went back in time?

No

Why?

I didn’t like people then

I don’t people now

 

I could go on but it’s all going to be the same

Would I do anything differently?

No

Why?

Because I’m the same person now that I was before diagnosis.

It has not changed me.

It never will.

I won’t let it

I don’t live with Diabetes, it lives with me!

I would however have made sure I was wearing shoes when I left hospital. The sudden realisation that you are crossing the road still wearing your slippers makes to feel like a total knob…….

Live Long and Bolus

Grumps

Love Changes Everything

9 Feb

sparearose-logo-trans

They say that Love Changes Everything.

Someone even wrote a song about it…..

Is it true though?

Personally I couldn’t give a toss if it is or isn’t!

However,

It’s almost that overly commercial time of year where women receive skimpy garments that they would never purchase for themselves, bought by naive men that think it’s going to increase their chance of getting a blow job. All in the name of “Valentine’s Day”

 Call me unromantic, but guys, if you give that much of a shit about someone then just tell them. Every day. Show them. No. Not by sending them a picture of yourself trying to make your stomach look smaller and your know what look bigger, but just by being kind. Every Day!

Who knows, it might even increase your chances of getting laid more often……

So if you now wonder if your token Anne Summers purchase is a bit tokenistic, and that for some insane reason she will think that you bought it more for your benefit than hers, you can fix it…..

Buy the love of your life 11 roses.

On the card, explain why you didn’t buy her 12.

Tell her that you donated the money for the 12th to Life for a Child.

She will see that you have a heart, not just an erection………

 To donate, please visit:

 https://lifeforachildusa.org/sparearose/give/

 Live Long and Bolus

Grumps

 

Diabetes on Strike

14 Jan

 

So the other week the station staff on the London Underground (The Tube) went on strike for 24hrs meaning most of the stations were closed.
I usually have a 4 mile Tube ride through London, which i am not a massive fan of.

Why?

Because its public transport!

Why don’t I like public transport?

Because I don’t like the general public!

Especially before I’ve had coffee!……
Id already decided to get into London early and walk the 4 miles.

For the record. I do not like early either!
I kind of manage my Diabetes “on the fly” and tend not to plan things in too much detail.

Sound irresponsible?

I guess it could do, but in my head I’ve got 22 years of doing this shit stuff to fall back on so will be ok.

Also I’ve planned what I’d do to manage my BG’s in detail, but, my BG’s don’t follow plans….
I’m lucky enough to have an insulin pump and CGM so dropping Basal rates and quick checks of BG are mad easy and allows me to manage my levels on the move.
So in short,  I did a fuck load lot of walking and kept my BG’s in range.

No Hypos on the way there.

Dropping fast at the end of homeward walk, but what better excuse for a McFlurry right?
And this are my FitBit stats for the day…..

You wondering why I’m telling you this?

(Assuming you have actually read this far….)

Well.

I did a fair bit of exercise.

Burnt a lot of calories.

Kept BG’s in range.

Used less insulin than usual.

And I totally fucked up fucked up my feet!….

Blisters, cuts and sore as hell (which given they are numb due to neuropathy isn’t great)

Its ok. They will be fine. I’ve been dressing them and looking after them and they are on the mend.

I’ve learnt a few things though.

Diabetes management is not just about my BG’s, its about the whole me.

Sometimes I need to plan, even if its just wearing the right shoes.

I don’t hate public transport as much as I did.

However I’d prefer the public not to be on it…..

Live Long and Bolus

Grumps.

Diabetes Drone

30 Dec

drone

 

It looks like I was on the bad list. Again

Santa didn’t bring me a Drone for Christmas.

They can’t be that hard to fly. Right?…….

 

HCP -“Ok Mr Grumps. You’ve got what we call Droneabetes!”

Grumps – “What the hell is that?”

HCP – “Well. Your internal Drone has this fully automatic navigation system that flies it for you. It stays between these two levels. It won’t let you go too low so you don’t crash and it won’t let you go dangerously high either. And it gets better! It will still fly perfectly in high winds, avoid obstacles and even keep on course when you are asleep. Cool huh?”

Grumps – “Really cool. Why are you telling me this?….”

HCP – “You’ve got what we call Droneabetes!”

Grumps – “Yeh. You said. So is my Drone broken”

HCP – “Goodness no. But the navigation system is……… Now what’s the correct medical term?…..Oh yes. It’s fucked.”

Grumps – “Oh. Shit! So my Drone has crashed?”

HCP – “No. It’s flying a bit high. Ok. It’s stratospheric right now, but its ok, we can keep you here until we get it back into the range that you were before you blew a fuse. Errm, were diagnosed.”

Grumps – “Phew. That’s a relief. And then it will be working like it did before. Right?”

HCP – “Well. No. Sorry”

Grumps – “So how do we fix the navigation system?”

HCP – “Hang on… I know the answer to that one….. Yep. We don’t. Again. Sorry.”

Grumps – “Why not?”

HCP – “We don’t know how to yet”

Grumps – “When will you be able to?”

HCP – “Stop setting yourself up for cheap laughs on your blog Grumps….”

HCP – “We are not sure what causes it yet. Well not fully. You’ve blow a chip. But we are not 100% sure how. Or why. So if we replace the chip it could blow again. Anyway. Chips contain Carbs. I’ll make an appointment with your Dietician to explain that…”

Grumps – “Errm. Ok? So how will the Drone fly, stay in range and avoided all the variables that are thrown at it once I go home?

HCP – “You will have to do it manually”

Grumps – “That doesn’t sound like much fun!”

HCP – “Why not?”

Grumps – “I’m married. For years. And years. Manual is less fun. Trust me…..”

HCP – “Fair point. But it’s the only option.”

Grumps – “Oh. Bollocks. Guess I’ll have to then. Will you teach me how?”

HCP – “WHAT? The “Marriage bit???”

Grumps – “No! the other bit!”

HCP – “PHEW!”

HCP – “Yep. We will teach you the basics. Enough to get you started. Then you can go home”

Grumps – “Ok. Sounds easy enough……………………”

 

Live Long and Bolus.

Grumps.

New Year’s Revolutions……….

29 Dec

New Year’s Revolutions……….

No. I’ve not got the spelling of “Resolutions” wrong (although my spelling is total crap).

This is not a review of my 2016 you will be pleased to know. I can sum my year up in two simple pictures…….

 

So…

Almost another New Year….

Well. Actually yet another year but with just a different number isn’t it?

Is it starting anew, or just starting the cycle again?

I gave up New Year Resolutions years ago as I never stuck to them, just ended up pretty much where I was at the start of every year. More like Revolutions not Resolutions….

Don’t get me wrong. Being pretty much in the same place is ok with me. I quite like where I am and how things are going. Of course there are things I’d like to change….

  • Get Fit
  • Lose Weight
  • Get Rich
  • Frown More
  • Be the next James Bond
  • Save the world (let’s face it, we have really fucked it up)

You know. Realistic and achievable stuff……

Which is why my resolutions never got carried through maybe? Unachievable. Or in the short term at least.

The other reason is that I don’t pay attention to what works for me.

Take my Diabetes (actually, don’t take it. You wouldn’t want a bit of Grumps in you…..). End goal is to ride the London Surrey 100 (finally after 2 years of deferring my place).

If I want to drop my A1c, or just get more time in range, I set achievable targets (7 day average, then 14 day, 30 day etc.) so I can see progress. This keeps me motivated and the end result is the goal I was aiming for.

So that’s my approach for 2017!

Target?

  • No alcohol in January. Have signed up for Dryathalon and its an achievable quick win.
  • Walk 15,000 steps per day (actually use the fitbit for more than telling the time).
  • Take my bike off the garage wall (I’m not promising ill ride it but at least it will be like weight lifting 1 rep….)
  • Find an exercise I enjoy (NO! not that one! 10 seconds “max sprint” isn’t going to get me fit….)
  • Do what I said I would do and stop making excuses for why I didn’t!…….

We will see how it works out I guess

Grumpy New Year.

Live Long and Bolus.

Grumps.

 

Driving My Diabetes…….

2 Jun

My name’s Jeff Grumps, and it’s been 12 months since my last blog post.

Ok. That’s confession out of the way!

Well, the quick version. You’d be here for months if I owned up to everything…….

So.

My son turned 17 last month, and in the UK that means he can learn to drive a car. The foolish child young man is has blind faith in his father (according his birth certificate, that’s me) and asked me to take him out for his first few lessons……..

I’ve no issue with this as (you already know this) I’m offensively unstressable.

However, it’s been a bit of an education. After decades of driving, I just get in a car and drive. It’s all fairly automatic, I go through the motions. Use the functions and features of the available to me (steering, gears, sat-nav, parking sensors, indicators). Take in all the information that’s around me (traffic flow, cyclists, road signs the dick head other driver that cut me up on the roundabout). I put all this together and calculate the best thing to do in that given situation. The end result is that by a combination of luck, judgement and calculated(ish) risks taking, I arrive safely at the other end. Some journeys are easier than others, some longer, but in the long term the outcome is the same. I’m safe and where I need to be.

In order to show the boy how to drive, I have had to be more focussed on my own driving, eliminate any bad habits. The result being that I’m more careful and possible safer (or at least less unsafe).

Kind of sounds like my life with Type1……..

It’s all fairly automatic for me. I have the tools and information I need to put it together and calculate the best thing to do in that given situation. The end result is that by a combination of luck, judgement and calculated(ish) risks taking, I arrive safely at the other end.

Its time I have a period where I am bit more to be more focussed on my own diabetes, eliminate any “bad” habits. The result should be that I’m more careful and possible safer (or at least less unsafe).

For me, in life, with my diabetes:

Some journeys are easier than others, some longer, but in the long term the outcome is the same. I’m safe and where I need to be.

Live Long and Bolus

Grumps